The programme was launched in May 2008 and aims to help patients with undiagnosed diseases. The National Human Genome Research Institute, the NIH Office of Rare Diseases and the NIH Clinical Center organised the programme which has two main goals;
- To provide answers to patients with mysterious conditions that have long eluded diagnosis.
- To advance medical knowledge about rare and common diseases.,
For more information, FAQ, press releases and audio announcing the progamme or related material, go to:
URL: http://rarediseases.info.nih.gov/Resources.aspx?PageID=31
